There are now three different email lists on the topic of syringomyelia, focused primarily on cavaliers. These are:
** The CKCS-SM discussion list:
http://groups.yahoo.com/group/CKCS-SM/How the list describes itself: "Syringomyelia is a diagnosis which unfortunately is heard with increasing frequency by breeders and owners of Cavalier King Charles Spaniels. Where did it come from? Where do we go from here? An open mind and respect for differing views and experiences is appreciated."
Comments: This is an open, general discussion list, open to anyone interested in the topic,including people with affected dogs, cavalier owners generally, breeders, researchers etc. All topics are welcome for discussion. It is an unmoderated list (eg posts don't have to be screened before being posted) though there are two moderators managing the list.
** The Arnold Chiari Dogs email list:
http://uk.groups.yahoo.com/group/ArnoldChiari_dogs/How the list describes itself: "This is a support group for those who have a dog affected by the illness Syringomyelia (also known as syringohydromyelia or arnold Chiari Syndrome.)It is also for those who would like to learn about the illness and how it affects our dogs. Many breeds, including the Cavalier king charles spaniel are affected by this illness. Symptoms, treatments, (Medication/surgery), pain management techniques, and all related emotional issues may be discussed."
Comments: An open list, this is primarily a support group and the moderators prefer to keep that focus. There are other lists for discussing breeding issues and broader research-related issues for example. This is a moderated list; all posts are screened before being posted.
** SM Breeder Support List:
http://cavalierbreeders.com/lists.htmlHow the list describes itself: "This is a list for those breeders interested in SM (Syringomyelia) and/or those who have produced SM in their breeding programs and need somewhere to turn for support and sharing of information. This list is not for pet owners."
Comments: A closed, breeder-only list where individuals need to be approved before they are subscribed. Archives are accessible to list members only.
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The CKCS SM Infosite also has an SM discussion board here:
http://www.cavaliertalk.com/phpBB2/viewforum.php?f=32. This is open to everybody though registration is required in order to post to the board.